**DISCLAIMER** I am very tired. This blog may not make any sense but I will try anyways!
We are still in the ICU today and probably will stay here through the night. Savannah had a pretty rough night, (so did we!) one that I would not wish on my worst enemy. It was a bloody, congested night but she kept her breathing up so the good news was she did not to be intubated. She removed her own nasal "trumpet" (a nose tube that was holding her airway open) this morning. We were concerned that the swelling might block off the airway but she seems to be doing fine on her own and she seems to be less irritated without it. We had her arm splints off for a few minutes this morning and she immediately tried to suck her thumb, so the restraints are back on until further notice.
Her bleeding seems to have decreased throughout the day and her breathing is becoming less labored. She also had a blood transfusion this afternoon to stabilize her blood cell count. The plan so far is to stay here overnight and then get transferred to unit with less nurse supervision tomorrow. She still has not had anything to eat but I may try to see if she will take a little diluted formula tonight.
We also managed to slip out for a few minutes in order to walk across the street to Ronald McDonald House and get a nice hot shower. It was great, very clean and HOT. I am starting to feel a little better already. Hopefully tonight we can each get more than two or three hours sleep but I am not hopeful. Savannah seems to be most calm and pain free when we are holding her. So we will happily oblige her every whim!!
I would post a picture but NO one needs to see what she looked like this morning. Especially parents reading this for more information about palate surgery!!! Although they assure us that Savannah is a special case that has been a little more difficult than most because of her small chin and her very wide cleft.
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prayers!!!
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